After spending most of my Saturday morning/afternoon scrubbing the bathroom (since my male roommates seem to be allergic to Comet and scrub brushes… "Comet, it makes your mouth turn green… Comet, it tastes like Listerine…"), I headed over to the Tidal Basin with my roommate Eileen to participate in the Crohn's & Colitis Foundation of America Take Steps walk. The theme of the walk was "Make Noise!" — to not only help raise funds for research, but raise awareness for these little-known diseases.
Doing the walk was pretty inspiring. There were a ton of participants… basically every age, gender, species (yes, dogs were included) walked the two miles around the Basin. What was so inspiring was seeing all the family members and friends of those who were supporting a family member or friend with Crohn's/colitis. Most had formed teams, and had names such as "Stolen Colon," "The Crohn Rangers," "No Guts, but all the Glory," etc.
One of the more memorable teams was "Walt's Rockets." Their leader is Walt, who is seven years old and has Crohn's. Walt was one of the honored heroes at the walk — his team had 38 people walking, and so far they've raised $2,481. He said he picked rockets as his team symbol because rockets are fast, and he wants to find a cure fast. (Walt's team last year was "Walt's Cheetahs.")
I don't blame Walt for wanting to find a cure quickly. Crohn's is a devastating disease, and having seen the effects it's had on my own sister, I would do anything to get rid of it. To see Walt, who is only seven (and obviously has had Crohn's for over a year) bear this burden really struck a chord. It's not fair to him. There's no reason why he should have to deal with the countless blood tests, trips to the doctor, and explaining to his friends why he has to use the bathroom frequently. But unfortunately, it's a reality for him and 1.4 million other people.
Crohn's isn't easy to explain to people, and it's certainly not for the squeamish when divulging its details. For that reason, I respected my sister's wishes and kept my sister's condition quiet throughout grade school. She didn't want everyone to know WHY her face was all puffy from the super high doses of prednisone, why she had to miss summer camp because she was in the hospital… I felt it was the least I could do. Not to say that I was the best sister in the world and understood why she could be happy one day and so horrifically cranky the next… because I really didn't get it. Despite the change in diet and the seemingly thousands of pills she had to take every day, life was a rollercoaster of emotions and frustration for all of us.
Looking back, I feel really selfish. I can't sufficiently say I understand what people with Crohn's are going through, because I don't. I'm fortunate enough to not have this disease, and I will never know what it's like. But I feel like could have been more supportive in those early years. If there's one thing I truly regret, it's not being there for her enough (or, in some cases, leaving her alone) for the times when she needed it the most.
And for kids like Walt, I sure hope his friends are mature enough to realize that he needs their support, even if it's just acknowledging that even though he's a little different from them on the inside, he's still a great person on the outside.
That being said… Walt's team is looking to raise $3,000, and they're still a little over $500 short of their goal. It's not too late to donate, so please consider doing so.